Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, December
15, 5:00pm-6:20pm
WebEx members should get set up 10 minutes
before the scheduled meeting time using the link provided in the green button
on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as
opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center
cross infection guidelines. Please do
not attend in person if you have an active viral infection or any other
contagious condition.
Please have
this copy of the agenda and attachments with you during the meeting.
Agenda
1. Introduction
(5:00 – 5:10)
2. Adopt November
minutes (5:10)
Please review
Angel’s minutes on the blog or via her email previously sent to you
3. Project
Update (5:10 – 5:50)
a. Virtual
Meeting Proposal/Online Collaboration – Erick/Brian
Action Items : Colleen to provide Erick with the name of our contract in IT; Erick to contact IT for a status updates
Action Items : Colleen to provide Erick with the name of our contract in IT; Erick to contact IT for a status updates
b. CF Encounters
– Lauren/Devin
Action Items : Joan to provide input on how to disseminate information to the units (Ex: RT, in-patient unit, infusion, etc.)
Action Items : Joan to provide input on how to disseminate information to the units (Ex: RT, in-patient unit, infusion, etc.)
c. Informational Sheet on Masks – Devin
Action Items : Devin to check with the clinic on their recommendations for which mask(s) should be used
Action Items : Devin to check with the clinic on their recommendations for which mask(s) should be used
d. Issue Management
Decision Tree – Angel/Monica/Jay/Elika
Action Items : Angel to contact Meg to confirm that she will distribute this form; Colleen to contact Joan with regards to budget to print our new project documents on nice heavy weight paper
Action Items : Angel to contact Meg to confirm that she will distribute this form; Colleen to contact Joan with regards to budget to print our new project documents on nice heavy weight paper
e. Coordination
with CFF and external clinic development – Shawn
f. RPQ/MyHealth update – Jay
Action Items : Jay to contact My Health folks to see if they can get our RPQ form in a PDF format uploaded into the MyHealth site.
Action Items : Jay to contact My Health folks to see if they can get our RPQ form in a PDF format uploaded into the MyHealth site.
g. Clinic-Patient Opportunities –
Angel/Monica/Elika
Action Items : Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
Action Items : Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
4. Action Items
(5:50 – 6:00)
a. Joan – update on file storage recommendation
b. Angel – Status Report on parking perks pilot
results
c. Jay – Evaluate and report on new options for
pins or badges for members to wear during Stanford visits for council promotion.
5. Reminders
a. Publicize council
and council activities
b. Continue to complete volunteer requirements
c. Future Projects
CF Patient Medical Compendium
CF Patient Medical Compendium
6. Final
Comments/Discussion (6:00 – 6:10)
Next meeting January 19, 2015
Next meeting January 19, 2015
7. Closed
Session (6:10 – 6:30)
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