Saturday, March 4, 2017

ACFPFAC March Agenda

Stanford Adult Cystic Fibrosis Patient & Family Advisory Council
Date/Time: Tuesday, March 28, 2017, 5:00pm-6:20pm Location: Blake Wilbur Room W1084 & Join WebEx
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.
1. Introduction(5:005:10)
2. Adopt February minutes (5:10)

Please review Linda’s minutes on the blog or via her email previously sent
to you
3. ChairNominations/Discussions
Jay to provide decision on acceptance of nomination
4. ProjectUpdate(5:155:50)
  1. ResearchstatusupdateColleen
  2. ProposedRewordingofMissionStatement/NamechangeJay
    Implementation update
  3. Virtual Clinic Proposal/Online Collaboration Brian Volunteers Jay, Shawn, Angel, Brian, Ed (clinician role) All have devices and ready to start
  4. CFEncountersLarissa
    Abby to check with Larissa on participating in project
  5. Informational Sheet on Masks Larissa Larissa will update and share latest version
  6. Coordination with CFF and external clinic development Shawn One project approved, Shawn to continue support
  7. RPQ/MyHealthupdateJay Continues to support.
  8. FileManagementApproachJay
    DropBox has been evaluated, recommended to link to Council Web
    Page, Jay to continue evaluation, also to include OneDrive.
  9. Clinic-Patient Opportunities Angel/Elika Update
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5. Reminders
a. Publicizecouncilandcouncilactivities
  1. Continue to complete volunteer requirements
  2. Future Projects
    Hospital RPQ/Inpatient Preparedness
    CF Patient Medical Compendium
    Top requests for clinic improvement areas or informational needs
6. Final Comments/Discussion (6:00 6:10)
Next meeting April 25, 2017
7. ClosedSession(6:106:30)
Administrator invites you to this meeting.
CF Adult Advisory Council Meeting Fourth Tuesday at 5:00pm
Occurs the fourth Tuesday of every month effective Aug 23, 2016 until Jan 23, 2018.
4:40 PM | 2 hr 20 min
(UTC-08:00) Pacific Time (US & Canada)

This invitation is for the CF Adult Advisory Council Meeting taking place the fourth Tuesday of each month starting at 5 pm Pacific
Meeting Begins at 5:00 pm
WebEx and TelePresence Connections Open at 4:40 pm

• Telepresence attendees please press the join button on your touch screen to connect.
• WebEx attendees please click the green 'Join Using WebEx' tab within this invite.
• Next join the WebEx audio bridge by phone. Do not use computer audio. • Please mute your phone until you are ready to speak
• WebEx attendees to enable your laptop camera click the camera icon next
to your name in the meeting participants list.
Questions call: Kevin Hurley
Meeting password: w1084 Meeting number: 801090638
Join Using Telepresence
TP-900 Blake Wilbur-Tumor Board W1084
Call-in numbers
Toll: 1-650-479-3208 Toll-free: 1-877-668-4493
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Join Using WebEx
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Unified Communications Specialist Stanford Health Care
Mobile: 650-272-7579
Unified Communications Team: 650-721-2800
Access code: 801090638 Global call-in numbers Toll-free calling restrictions
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