Saturday, August 17, 2013

8-21-13 Agenda

Anyone calling in needs to do so AHEAD of time. Call-in or WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. 

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, July 17, 2013, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room & Webex

Open Session

1.      Introductions & meeting guidelines (5:00 – 5:05)

2.      Adopt July minutes (5:05 – 5:10)

3.      ACFAC / CF Center partnership projects (5:10 – 5:40)
Current project: “Supporting newly-diagnosed CFRD adults”

·                CFRD resource card: feedback from endocrine team and CF nutritionist (Angel, Laura)

·                Social Media/FB page: update from FB developer; process for page invitation/access (Brian E.)

4.      Quick Updates (5:40 – 5:55)

·         Temp secretary assignments (Jackie)

Closed session

5.      ACFAC goals (6:00 – 6:40)

·         Anecdotal research from patients and clinics; read (Amber and Angel)
·         Potential council vision/plan; read (Brian E. and Laura)

6.      Readout of Action Items (6:40 – 6:45) (Richard)

7.      Next meeting: Wednesday, September 18, 5:00pm-7:00pm


To attend this meeting via Webex:

Topic: CF Meeting- August 2013 
Date: Wednesday, August 21, 2013 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 809 236 000 
Meeting Password: Wel2010come 

To join the online meeting (Now from mobile devices!) 
1. Go to
2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: Wel2010come 
4. Click "Join". 

To view in other time zones or languages, please click the link:

To join the audio conference only 
To receive a call back, provide your phone number when you join the meeting, or call the 
number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers:
Toll-free dialing restrictions: 

Access code:809 236 000 

For assistance 
1. Go to 
2. On the left navigation bar, click "Support". 

You can contact me at: 

To add this meeting to your calendar program (for example Microsoft Outlook), click this link:

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appropriate players. To view this type of rich media files in the meeting, please check whether you have the players installed on your computer by going to https://stanfordmed.we 

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